We left California for Vermont today. This is our first attempt at a time lapse video. I will be tweaking the settings for tomorrow. Please let me know what you think. It was a beautiful drive.
Thank you all for your patience. I have regressed health wise rapidly in the past few days, so I have been unable to edit and upload the videos. Unfortunately, I don't know when I will feel well enough to accomplish that. I haven't had IV hydration in exactly two weeks, and that appears to be about a week too long. Although I experienced symptoms after missing my first two infusions last week, I didn't not anticipate them snowballing so rapidly into something I cannot control. I am on the struggle bus bad right now. I am not consuming any food orally. It takes too much of my severely limited body water to process anything heavier than electrolytes and juice. I have limited my intake to hydration only. I am also having serious blood sugar issues if I am off the feeding pump for even an hour or if I try to dilute my formula to increase my water and electrolytes. I am losing my ability to function and pass as a human in a much more rapid fashion than I anticipated and it is ac...
Hey Folks, Last week we got some bad news. We currently rent the house we are living in near Sacramento. We moved here to have easy access to the UCDavis hospital and all of my doctors, including my newest surgeon who is scheduled to operate in a little over three weeks. Unfortunately, the folks who own this house need to sell. We are unable to purchase it, so we have to move out by the middle of September. Due to the serious housing issues in California, especially after last year's and this year's fires, we can no longer afford to stay here. Rent went up more than 25% in this area in less than a year. I have cancelled my endometriosis excision surgery and have no anticipated date or location for rescheduling at this time. We are moving back to New England, to be closer to family. I am scrambling to find physicians in Boston who can take my case and continue to help. My current team here is frantically trying to get me stable enough for the week long drive across the country...
Comments
Post a Comment