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Showing posts from June, 2018

The Tribulation of a Coiled Tube Change

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Last Monday, the cap for the jejunal port on my feeding tube tore some, though thankfully not all the way. I called interventional radiology and the wonderful person on the phone found me a spot for Wednesday, June 20th. Quick turn around and I was equally stoked and scared. This was my first tube change. I am nearly five months out from the placement; it is nicely healed, but I have never done this before. Many questions swirled in my head. What is the technical process for replacing the tube? Do I get anesthesia, sedation, pain relief, or anything? How long does it take? Who does the actual replacement? Can I get the exact same tube? Can I feed the night before? Do I need to take extra meds or skip any meds? Does it hurt? Does it hurt? That scared me even more. I used acetaminophen and cannabis after my feeding tube insertion and it was not even remotely close to enough pain management. How much would this hurt? Heart racing, I jumped on social media and beelined for ...

A Letter to Myself

Let's talk anxiety.  I have been having some strong feelings about my health and the decisions I am facing. Thus far, the only real permanent decision I have made regarding my body was the removal of three of my wisdom teeth. My port and my feeding tube are more or less reversible, scarring notwithstanding. These next decisions won't be. I find myself thinking about these choices over and over again. I wish they weren't so huge but I am immensely grateful to have access to the doctors and healthcare to be in the place to make these decisions. I found a letter I wrote myself last year. I was really struggling with how immense all of these illnesses felt, so letting it out productively really helped. Finding it again now was fortuitous. After reading it, I feel more confident in myself and my journey. Sometimes everyone needs a reminder. Today may not be a great day, but tomorrow is a new day to try again. Please try again. <3, Madame McWeed I know there's a ...

McWeed Industries

Welcome to the infancy of what will become McWeed Industries. My dream is to one day use McWeed Industries as a force for change and social justice in this world. It's entire existence is a discussion, designed to provoke and provide a vehicle for growth. Much of life is interconnected and interdependent, yet we all like to compartmentalize it. This blog will touch on many topics, but they will be my unique perspective on them and how they interconnect in my life. It is my blog after all. I will discuss things like chronic illness, cannabis, food, psychology, cats (can anything on the internet exist without cats?), horticulture, homesteading, food as medicine, income inequality, the French diaspora in the new world, science fiction, and probably anything else that wanders into my mind. I will also use it bring you updates and milestones of McWeed Industries, but we have a long way to go until we are off the ground. Right now, we celebrate the launch of the blog and the website! For...