The Tribulation of a Coiled Tube Change
Last Monday, the cap for the jejunal port on my feeding tube tore some, though thankfully not all the way. I called interventional radiology and the wonderful person on the phone found me a spot for Wednesday, June 20th. Quick turn around and I was equally stoked and scared. This was my first tube change. I am nearly five months out from the placement; it is nicely healed, but I have never done this before. Many questions swirled in my head. What is the technical process for replacing the tube? Do I get anesthesia, sedation, pain relief, or anything? How long does it take? Who does the actual replacement? Can I get the exact same tube? Can I feed the night before? Do I need to take extra meds or skip any meds? Does it hurt? Does it hurt? That scared me even more. I used acetaminophen and cannabis after my feeding tube insertion and it was not even remotely close to enough pain management. How much would this hurt? Heart racing, I jumped on social media and beelined for ...